How Technology Helped A Young Japanese Man With A Genetic Disease

INSUBCONTINENT EXCLUSIVE:
Since elementary school, Yunik Shin studied with the help of technology.Tokyo: Yunik Shin was born with spinal muscular atrophy (SMA),
requiring assistance for his daily life
Hoping he'd be able to learn as much as possible on his own, his parents gave him a personal computer when he was just three years old.Shin,
now 21, studies Western Philosophy at Tokyo University, one of Japan's best universities, and lives on his own in an apartment near the
campus."People everywhere are forging their own way in life, overcoming challenges to achieve their goals
For some of us technology is at the heart of this journey," Shin said.Shin's journey hasn't been an easy one, but thanks to his parents
lobbying a local education board - which once suggested Shin go to a special needs school - he has always been studying at regular
schools.Since elementary school, he studied with the help of computer software, such as Microsoft Word and OneNote
He uses a small, special mouse to draw graphs."By using Windows' on-screen keyboard and moving the mouse, I can use my PC for study and
communicating with my friends," he explained.Since 2013, Microsoft has assisted his learning, including preparation for the tough university
entrance exam, by providing IT tools, such as the on-screen keyboard and a cursor control system that uses eye movements."I have faced lots
of challenges like everyone else, but we often need help too," Shin said
"I'm currently trialing the new eye tracking software that enables me to move the mouse cursor with my eyes
This is one more example of how technology will help people like me work more efficiently.""My dream is that one day these kinds of
functions will not be listed under accessibility but will be an integral part of how we all work to make a better future," he added.In 2016,
Shin successfully passed the entrance exam for Tokyo University after spending a year at a preparatory school together with other students
who aimed to enter the country's competitive universities.Now as a university student, Shin continues to study on his electric stretcher
with assistance and support from helpers and the school
Since April this year, he lives on his own with assistance when he needs to move.The entrance exam for Tokyo University is one of Japan's
most competitive assessments
Before the exams, Shin submitted a request to the exam authority, the National Center for University Entrance Examinations, notifying them
that his physical condition required more attention.During the exam, Shin sat in a separate room with more time to take the paper, and was
assigned an assistant to write down his answers
Shin was also allowed to use a computer, especially when an answer required a graph.Shin's favorite quote by Friedrich Nietzsche, the
philosopher he admires, is "Man is something that shall be overcome." The feisty student is often led by these words when reflecting his own
physical disability."I believe that we need a new inclusive philosophical framework because technology is now empowering people to become
independent beyond any physical barriers," he says.Learning from those with disabilities to improve their opportunitiesOne of those working
with people with disabilities, such as Shin, is Microsoft Japan employee Tomoko Ohshima.Gathering their comments, requests and feedback, she
passes those to the tech giant's developers to create tools to help people with disabilities.Ohshima was encouraged to take on this project
by Microsoft Japan some ten years ago, inspired by her interactions with a colleague, a programmer who is blind
"Technology is so helpful for people!" she says.Meanwhile, Japan's entrance exam system is also improving to accommodate students with
various disabilities
A consensus has been established to allow students with disabilities to use tools approved by the authorities, such as computers, and to
extend the test time depending on each student's condition
Ohshima's commitment of the last ten years coincides with this improvement, and has allowed her to witness the transition.Challenges still
remain for students with disabilities
For example, having a computer read out exam questions is rarely permitted in Japan
Instead, a reader is assigned to read the questions aloud for the examinee
This does not always work well for the students -- some students might want to read important parts more slowly, and others might want to
have questions read out repeatedly to better understand them.One of the reasons computer reading has not been approved is because examiners
need to create extra exam papers by digitalizing them
This may be avoidable with optical character recognition (OCR)."We are willing to provide any useful help and technology to create a society
in which anyone can have the opportunity to take the entrance exams and be judged fairly regardless of one's physical condition," says
Ohshima. (Except for the headline, this story has not been edited by TheIndianSubcontinent staff and is published from a syndicated feed.)